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Bulletins
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6 November 2006: From Steve Mann. Bowing to popular demand,
I'll keep this site going for a bit longer to allow everyone to note
down the new Goodman address/phone number (see contact page). But
the email address is now being swamped with spam and, as Boss doesn't
have a computer, it seems more sensible for people simply to write to
him. So please don't send any new messages via email... |
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24 October 2006: From Steve Mann. A couple of new photos in
the gallery today (courtesy Tony Henderson) of Boss at his benefit night
at the Inn on the Green. Lousy weather but a good turn-out and great to
see the man out on the town again... |
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18 October 2006: From Linda Homewood. He was over the moon
as you'd expect to at last be reunited with all his STUFF and new stuff.
He is settling in and getting used to his new surroundings - still some
boxes to unpack but John is going to put more shelving up on Sunday to
accommodate his collections of all sorts, so after this last push to get
things in the places he wants, things should accessible for him. I'm
taking my mum (his aunt Mary) to see him and will take lunch up. he is
looking forward to the bash Sunday evening. He has been allocated a
cleaning lady once a week and is having an assisted shopping trip from
the community care team to see how best for him to carry things etc
given right hand is out of use. I'm sure he will find a way round all
these things in time, as we all know how fiercely independent and
determined he is. The hospital link worker has been a complete star and
helped me so much and she will continue to provide any support David may
need for the next 12 weeks. |
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16 October 2006: From Steve Mann. Ladies and gentlemen - the
DJ is back in his booth... Boss left St Charles today and is now
ensconced in his new flat. I guess, for the time being at least, I'll
keep the boss@mannorak.com email
for people to get in touch with him, but I'll be closing the website
down over the next week or two. Many thanks to everyone who responded
with messages of support, photos and financial contributions. And, on
the subject of finance, the fund has been virtually wiped out in getting
his flat sorted out - furniture, washing machine etc - so if you haven't
contributed already please feel free to bung some money his way (and
don't forget the Boss Benefit night at the Inn on The Green on Sunday).
Thanks again, folks... |
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14 October 2006: From Steve Mann. Irene texts to say that
she's been in to visit and deliver DVDs and, as everyone has said, Boss
is counting the minutes until he can go to his new home. She's also sent
him a mobile voucher - and asks anyone visiting this weekend to
activate it for him. |
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13 October 2006. From Tim Rundall. Visit on 9th October. I rolled up at around
5.30 to find Boss reclining on his bed trying to ignore the groaning of
his neighbour and was delighted to see the speed with which he leapt up
and greeted me with a clear voice, a firm handshake, a twinkling eye and
a healthy complexion - the boy is lookin' very good! looks like he'll be
moving into the new flat next week and boy is he keen! it seems churlish
to put a damper on things so i'll stick to the positive - we all know
that communication, and most especially, reading remain problems but as
i pointed out, plenty of people get through their whole lives without
being able to read, it may be a real drag but it ain't the end of the
world, and if the ol' bod can make such a great recovery then in time
let's hope the rest of our pal catches up... you've only gotta spend a
short time with boss to know the same dude is still resident inside that
fine frame. he's also looking forward to the benefit do at the inn on
the green and was anxious that more than a handful of people show up! so
there you have it - now you've all gotta come! |
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10 October 2006: From Linda Homewood. Just to let everyone
know what is happening... On Thursday 12th Oct John and I will be at
David's new flat to see in the new carpets, fridge, cooker, w/machine,
furniture - we will be putting up new curtains and poles etc. It is down
to all you folks who contributed to the QUIDS IN FOR BOSS fund that
Richard Adams set up (a big thank to Richard for all you have done!!!!!)
that he is able to have these things and I know how much he is
appreciating what you have so generously given. He has chosen all the
things himself and I can't wait to see his face when he steps through
the door. We are moving all his other things from Lanark Road over the
weekend and he will be in his new abode Monday afternoon. I am putting a
notice board up in David' s kitchen for use as a message board and
contact numbers which i hope will prove helpful for him and all his
visitors. The web site has been an invaluable tool for all of us - thank
you Steve once again for all the work you have done... I know you will
all be looking out for David and I thank you for that...we all now just
want to see him enjoying life... thank you to all his friends !!!!! |
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8 October 2006: From Louise FitzGerald. Boss came round for
roast beef etc today. He was communicating well, enjoyed a family
afternoon and was quite flirty with one of my girlfriends who was
lunching too!! He so wants to be out of hospital - the days are endless
and the bureaucracy goes on and on. He hopes he will be released on
16th October. |
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6
October 2006: From Gwen. What joy, what a surprise. Boss not
only walking with a stick but perfecting his swagger. I arrived in the
ward after an absence of a few weeks and whilst keeping up with his
progress via bulletins, I was totally unprepared for the Big
Improvement. I was able to share his pleasure and excitement at the soon
to come move to his own place, his delight and amazement at the number
of Birthday cards and also his pleasure and surprise at mutual friends
and associates from the past like Sue Earley turning up. The difficulty
with speech is a big drawback and I know that frustrates him but he'll
get there. It was a positive and enjoyable visit. He does like Smoothies.
I won't be around for a couple of weeks so all being well he will have
moved on by then. I left him in good spirits, and look forward to seeing
him in his flat not a hospital ward the next time I see him. |
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4 October 2006: From Linda Homewood. Well the day for the
big move is drawing near at long long last. David is full of all the
emotions you can imagine, he is so desperate to be in his own space,
he's so so ready to leave as you all know!!! The council decorators are
hopefully going to be finished this week, cooker washing machine
fridge/freezer to be delivered we hope next Thursday, waiting to hear
when carpets will be fitted and furniture delivered, it is such a
waiting game but know he will be thrilled with all his choices. The
occupational therapist will be making a final visit to the flat before
he moves in to install special aids - e.g special electric tin opener
and chopping board, trolley thing not sure what else, so its all
happening. HE WILL BE OUT VERY VERY SOON! He can't wait to see all his
mates on his own turf. |
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1 October 2006: From Tony Henderson. Visited
Boss.G. late this afternoon, took him some fruit and a nice juice drink,
which he soon tucked into. Boss was pleased to see me, he was in good
form, and we had a good chat about the past and also about him leaving
hospital in due course. Communication was generally good; although Boss
did revert to writing down various words he was having trouble saying at
times, understandably. He looked well and was in a cheerful mood
throughout the visit, before I left he went to great lengths to tell me
how pleased he was with the small model that I made for him for his
recent birthday celebration, which I really appreciated. |
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29 September 2006: From Roger Hutchinson. I visited Dave for
the first time while passing through town last Monday (25th). Thanks to
this bulletin board, and an earlier visit to Richard and chat with
Steve, I thought myself up-to-date with what to expect. What was so
pleasantly surprising, though, was finding the same old Boss in all but
articulation. The light of wit and intelligence is still there in his
eyes, especially when scoffing marinated green olives by the fistful. He
was thrilled by the imminence of his move to his new flat off Harrow
Road - took me through a ground plan of the place and its whereabouts. I
don’t need to tell most of you how frustrated he is by his present
inability to write properly or talk. But he doesn’t need telling that
these are mechanisms which can and will be re-learned, with application
and an active mind. He’s certainly not lost the latter, which is truly
fantastic. And if he’s doing well, so are all you members of his support
team, friends and family. You guys are the best. I always knew it, Dave
always knew it, and when the chips are down we were absolutely right.
There’s a long road ahead, but the cheque’s in the post, Richard. Tell
Dave I’m hot on the trail of the stout Hebridean
walking-stick-cum-assault-weapon I promised him as a late birthday
present. And when he’s up to the train or plane journey, there’s a long
holiday for him waiting here in Raasay. All he’ll need to do is stroll
between his groundfloor bedroom, the kitchen and the bench facing the
sea outside. It won’t even matter if he still can’t talk - people up
here are used to incomprehensible Englishmen. |
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25 September 2006: From Louise FitzGerald & Eric Burden.
Yesterday, we took Boss out for the afternoon. I spoke to the nurse in
charge who cleared it with the doctor. We arrived at three. After
getting in the car Eric asked Boss if there was anywhere he wanted to go
- Boss nodded and directed us to to the Harrow Road, turn Left a little
way down and then into Fernwood Road (I think) where he pointed out
where he is going to live. He is very pleased with it. Getting back
onto our route we passed a curry house and much enthusiastic noises
emanated from the front seat - so we all agreed a curry would be in
order after we had visited the river. It was a lovely afternoon and as
we whizzed along the M40 with the roof and windows open Boss was
laughing with joy. We went to the Bell & Crown at Strand on the Green
and spent a pleasant hour looking at swans, the tide coming in, the
world go by, chatting about the flat. He does not want social services
to get it together completely for him - cleaned, maybe flooring and
shelves but he wants to make it his own - which is totally
understandable - I'm sure there will be volunteers to help out. After
leaving the river we dropped back to our house in Shepherds Bush -
initially Boss wanted to look at the website but then got daunted by all
the stairs and settled for sitting in the garden stroking the cats and
relaxing. Back into car for curry when he said there was a curry house
just down the road he liked even better - The Ajanta - where he was
welcomed like a friend. So we shared a mixed starter and prawn puri -
and Boss had green chicken curry, some rice, veg and peshawari nan.
After this it was time to get back - it was about 8.00 and Boss was
ready to lie down. Overall a successful venture and one to be
repeated when anyone has the opportunity. |
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Sunday 24 September: From Richard
Adams. Visited Boss in the early afternoon shortly before Louise and
Eric arrived, who were due to collect and take him out for the afternoon
in their motor. Took him the birthday Swatch watch, the means by which
he can more effectively organise his own day and get to where he's
supposed to be and on time - in the gym, speech therapy, meals and the
rest. With the aid of his stick, he's walking much greater distances and
extremely pleased with himself, as he should be. It has now been
confirmed that Boss has been allocated his own Westminster Council flat
- at last! Not only that, but it's in W9 (we think Fernhead Road just
off the Harrow Road) which pleases him no end, and many of us too, since
it keeps him around the Grove and in an area very familiar to him and
fairly accessible for friends from farther afield. Once the place has
been decorated and carpeted, they will release the exact address. The
discharge could happen very soon and every effort will be needed to get
him certain basic items of furniture. Boss is busy looking at Argos and
Ikea catalogues and has a very clear idea of what he wants: biscuit
coloured sofa; comfy chair; washing machine without built-in
dryer; stove; fridge with generous size freezer; his own bed! He is
absolutely bursting with enthusiasm at the prospect of escape, seems
very determined to succeed, and can barely contain his excitement at
being able to pick up some of the threads of his life again - he wants
outta' there and no effin' mistake! There are still concerns about his
powers of speech, however. Although his speech and vocabulary have - it
seemed to me today - marginally improved and he was using more words
than when I last saw him at his birthday party, but his progress is
painfully slow. He makes a real and conscious effort to his right hand
more frequently, which he thrusts out at you for shaking. Clearly, he
couldn't use a telephone effectively and probably won't for some time to
come but he's writing more when he gets stuck on a word or phrase and
uses his left hand for the purpose. Since he's a natural right-hander,
this is a good sign too. On Monday, Roger Hutchinson is due to pass
through London on his way back from Spain and pay him an afternoon visit
laden with anti-pasta and black olives from Caroline. |
21 September 2006: From Sue Lucy (Earley). My sister
Sheila and I managed to visit Boss for the first time since his
stroke on Saturday afternoon (16th) and found him to be much better
than we had anticipated and in a very positive mood. He was really
happy to see his old Essex gang members - even if we had brought him
only low fat tuck and fruit. However, Boss is very happy with his
weight loss and looked so good. I asked him many questions and he
really tried to answer them all. Having read all previous bulletins,
I was amazed at the way Boss was communicating with us and staggered
when he managed to walk, more or less unaided, to the garden, then
around the building and back to his ward. If anyone is visiting
soon, he would like some more smoothies and please wash his water
mug out as the staff seem to be very busy and he was drinking water
from a very sticky plastic glass.
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19 September 2006: From Rich Deakin. Went in to see Boss at
about 5.30 on Friday 15th September. It's a pity I couldn't make it on
his birthday, but I'd already made arrangements for the 15th and had
booked coach tickets some time ago anyway. Judging from the photograph
it looks like he was in good company anyway, and he indicated he had a
really good time, and proudly showed me a birthday model that Tony
Henderson had made for him. I felt that his ability to communicate had
improved quite a bit since I last saw him in July, but there is still
some way to go, and at times we had to get by with me guessing what he
was trying to say, which must be very frustrating for him, especially
when I wasn't guessing correctly. We also managed to get some DVDs
playing that he'd previously had trouble with, and he was particularly
chuffed when the "Elvis '68 Comeback Special" appeared on the screen, so
much so that he exclaimed "Oh yeah!" and proceeded to hum and move along
to the beginning of Trouble. Gaz Mayall then paid a flying visit
promising Boss some wild damsons on his next visit, which Boss was very
approving of. Apparently he'd acquired a taste for these particular
damsons when Gaz previously brought some in for him. After Gaz left we
had a laugh looking through the photo album that Steve Mann presented
him with, and I then had to get back to Victoria for my coach, but I
left him in very high spirits and he'd been very animated and positive
throughout the visit. Good luck Boss! |
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13 September 2006: From Steve Mann. He knew we were coming -
so he baked a cake! The Goodman birthday bash took place as arranged
this afternoon in the garden at St Charles. Boss in his element -
surrounded by friends and unwrapping an array of presents. As Linda has
said, it's heartening to see how well he can get about nowadays. When I
arrived he demonstrated his new-found agility by getting to his feet and
standing without the aid of his stick. Boss had baked us an
ultra-chocolate cake and sat beaming at us as we tucked into it. He was
particularly taken with a photo album I put together for him of the
photos submitted to this website - many thanks to everyone who sent in
snaps (and please keep sending them so the album can be updated at a
future date). |
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12 September 2006: From Linda Homewood. So delighted to see
David walking with just a stick and going great distances. My mum and I
took him down to lunch in the hospital restaurant which was great for
him to exercise his own choice of food (albeit a limited choice) - he
tucked into a roast beef dinner which he enjoyed. Spent some time in the
garden before meeting Richard for the care meeting.
David is now chomping at the bit to get out of hospital and lead as
independent life as his situation allows, as Richard said the main
obstacles are accommodation and communication. The care team I know are
pulling out all the stops to maintain him in the post codes he has
requested, as we are all aware the communication side of things will be
extremely difficult, and I worry about his vulnerability out there. He
was in great spirit and really looking forward to the get together of
many of his friends on Wednesday to celebrate his birthday (have a great
time everyone). My mum and I will not be able to make it as she has an
important hospital app - we will be in over the weekend again. |
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9 September 2006: From Richard Adams. Went to another team
meeting at St Charles with Linda and Boss's Aunt Mary. They seem to be
coming thick and fast just now and will probably continue like this
until his eventual release, the latest forecast being 2 October. There
are two major obstacles to this date being adhered to: his powers of
spoken communication which gradually improves of course, but progresses
at a very slow rate, although 'nice changes, gains in new sounds' have
been noted by Anna, his speech therapist; finding him somewhere to live
is proving to be the real problem, especially since he is determined to
remain in the W10, W11, W2 areas, as indeed he should. The search
continues but it is a worry to Boss and of concern to his carers. As
anyone visiting him just recently will have seen for themselves, his
mobility has come on strong. Walks with one stick but confidently and
with great panache. The distances he can now cover increases daily,
where the journey to the dining room has become almost a doddle. Today
he went for lunch in the hospital restaurant with Linda and Aunt Mary
which involves coping with 2 flights of stairs, several ramps and
requires him to cover a much greater distance. Funny how, in both
instances, food probably played its part! Hospital staff want to remind
everyone who visits and brings food with them, that he is DIABETIC and
must be careful what he eats and we in turn must be aware of this by not
presenting him with chocolate cake and the like. The staff will shortly
draw up a list of forbidden items but, better still, just use your nous!
There is to be a birthday party this Wednesday, 4.00 pm, 13th September
to celebrate his 58th! If the weather is kind we can gather in the
garden and it is suggested we each bring something to eat and/or drink
unless you prefer hospital food! Boss will, in all likelihood, be making
his own cake which will be the most fantastic achievement. Last week,
apparently, he made pizza for his nursing team and is due to cook again
tomorrow. He's getting there in the best way he knows how, in his own
time. |
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7 September 2006:
From 'Slim Tim' Rundall. Boss was in fine
form today, looking trim and very obviously excited about being told he
can leave hospital in four weeks. His arm and leg much improved in the
four or so weeks since i last saw him, it was great to see him standing
on his own two feet again. He was also very pleased to mention his
birthday several times!!! Speech and mental processes still sadly not
much improved... he "explained" how the information he wants to convey
comes into his head perfectly clearly but gets tangled up on the way to
his mouth and it obviously frustrates him that he can't get it out
right, or that he forgets, or cannot keep focus on, what he wants to
express. This is gonna take some time. His pleasure at leaving is also
of course tinged with some trepidation about where he will live and the
practicalities of coping alone although he was emphatic that he didn't
want four or five "helpers" calling in daily - one or two would be quite
enough! I took along a few peaches and bananas as well as some yummy
chocolate cake and was glad i hadn't brought a chinese too as russell
turned up bearing a curry which went down a treat (some of it down
boss's front but never mind!) they seem to keep moving his bed around
but at least he's getting closer to the door.... he really is looking
forward to his birthday so i guess it's gonna have to be a good 'un eh
folks? see you there! oh and he was very pleased with his TWO copies of
the new dylan cd lucky chap! |
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3 September 2006: From Richard Adams. Visited boss late this
afternoon on what has been a beautifully sunny, late summers day. Irene
and Sam were also there at the bedside having not long returned him back
to the ward after taking him out for a spin to the hospital garden for
tea. He looked in really good nick following his outing and was very
happy at seeing Irene again. Aside from a fresh, but unripe, mango and
Bob's latest, 'Modern Times', I took with me Tony Mackintosh's box of
Dingwalls flyers and printed ephemera which we all pored over, issuing
snorts of delight at Ed Barker's hilarious cartoons, marvelled at band
line-ups from over 30 years ago, scoured the 10th Anniversary newsletter
edited by none other than Mark Williams, reflected on the invitation to
Howard Barker's wake at Dingwalls following his accidental drowning,
ogled a couple of photographs of a really stunning and shapely Carol
Grimes in her prime, and became quite transported at the reams of
reminders of those Camden nights. There was just too much to take in at
one sitting. Talk of the moment is Boss's upcoming birthday and thoughts
of gathering in the garden, 4'ish Wednesday 13 September, but
confirmation and more details about this to follow. |
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1 September 2006: From Linda Homewood. Just a little
reminder to David's friends that its his birthday on the 13th Sept - I'm
sure he would appreciate the odd card. Not a great deal to add to
Richard's message, still no news of accommodation. Hope there will be more
positive moves at the next care meeting. He does continue to improve in
all areas and is working so very hard with all the wonderful care staff in
all depts - such a group of dedicated people. |
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23 August 2006: From Richard Adams. Went to the team meeting
at St Charles with Boss and Linda this morning, to discuss his progress
over the last few weeks, and to set him goals for the next period. Sam,
his physio, is very pleased with his improvement: in walking unaided as
far as the dining room at something less than stampede pace; can mount 4
or more steps; more frequent use of right hand and arm which is
strengthening gradually and slowly becoming more dexterous; can do more
personal things for himself. He needs to avoid making 'compensatory
movements' and turn his attention to more intricate motions such as
turning on a tap, working the brake on his wheelchair, using his right
hand to use a fork. He's cooked an omelette and made tea. Anna, his speech
therapist, said that he was progressing and there had been some gains, but
more slowly - he needs to work harder at expressing himself, to make more
sounds and be spontaneous. His ever-increasing range of funny facial
expressions rated very highly. Continues to have problems with his vision.
The third person there was his Westminster social worker Elizabeth
O'Reilly. Finding a suitable flat in W10 or W11 won't be easy because only
a small part of those districts falls within Westminster terrain. He gets
to refuse, at most, 3 properties 'they' believe would be suitable for his
needs even if it falls outside his preferred area. Benefit claims -
housing and disability - are beginning to take effect and putting things
in place continues at Council-like pace. The financial side of things has
been a grind: firstly for Irene who beavered away at the whole ghastly
claims process and prepared the ground for Joy, his key-worker at St
Charles, who is a pro form filler and does nothing else but deal with
people in 'departments' that you only ever get to speak to once . She has
done a brilliant job for such a difficult and testing claimant! They have
set 24 September as being his earliest possible discharge date but this
can be extended if his progress has not been as good as expected. Boss is,
as everyone must know, bursting to get back into leading his own life
again, but he does have certain concerns even though he can't fully
express what they are. Every one one of us who have followed his progress
since April must have a pretty good idea of what that future might be like
when he confronts the basic practicalities of living a life now
transformed. There will be a continuing stream of, if necessary, up to 4
daily Homecare visits, with ongoing therapy, speech and physio - carers
will arrange and encourage Boss to get out to special group meetings at
UCL, for example, run by
www.ukconnect.org.uk. Looks like he will also be getting a Westminster
Cab Card which allows him an annual allowance towards the cost. Oh, and
they will also run to an 'escort service' should he be in need of one!
Boss is also keen to get into computers and become internet savvy, so we
are looking to blag Westminster into buying him computer equipment and
maybe some personal tuition. On a different note, Tony Mackintosh called
round this afternoon, with a great fat box file of Dingwalls flyers and
other printed ephemera. A real treasure trove if you like that sort of
thing, but it's Ed Barker's crow drawings - 100s of 'em - that make you
laugh still. As well as taking them in for Boss to look at, am also
searching for the crow cartoon that most looks like him. Took a couple of
photographs (one for his prospective Cab Card card id) on his way to lunch
in the St Charles canteen with Linda. Boss is proudly holding an A4 sheet
of graph paper on which he has written three postal codes: W10, W11 and -
crossed out - W9, just in case the social worker didn't get his point! He
was in really good form. |
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19 August 2006: From Gwen. I was relieved that Boss was in a
better frame of mind than the last couple of times I have visited end of
July and beginning of August. He had been happy to show his counting to
eight abilities last time but maybe just the frustration at being in hosp
so long and my being unable to work out what he was trying to communicate
were just getting to him plus Micky not coming etc. also my visits
unfortunately were cut short by the Physio carting him off. I stand
reprimanded and made sure I arrived on a Saturday this time, so the visit
was relaxed and without interruption, and with pen and paper and a growing
but v. small vocabulary we didn't do too bad. He requested shampoo and
razors decent ones. I will try and get in with the goods but I have to go
into hosp myself v. soon and so won't be round and about for a few weeks.
so could someone please take note and supply. I dug up photos of Boss and
Mac, Boss and Micky and John Manley, and Simon etc at the party after my
wedding to Tony Dawson and showed them to him. He was pleased to see the
faces but because of the memory situation got confused about when and
where it was. Lots of toe wiggling and leg movement. He was having a kip
when I arrived so no leaping in and out of bed or zimmer framing just a
very pleasant cheerful visit. I left him in good spirits. |
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15 August 2006: From Julia. Went to see Boss yesterday
afternoon and was amazed at the difference from last time with his leg and
arm. The occupational therapist came to pump up his wheelchair. She was
going to give him the board to slide on to the bed but he said NO ! He
said one, two, three and stood up. He repeated it again, after the tyre
had been pumped up. He implied Micky Farren wasn't coming over and was sad
about that. His speech wasn't that much better but his swear words are
fine as usual. |
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11 August 2006: From Lou FitzGerald. Boss walking up and
down the ward with aid of zimmer frame. |
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28 July 2006: From 'Slim Tim' Rundall. Just
got back to Brighton from a long visit with Boss which was quite a spirit
lifter. On a practical level his glasses are busted and it was too late to
get hold of some superglue but Dave from the Gold who was also there for a
while said he'd arrange that on Saturday as did a nurse so hopefully
that'll get done quickly. Boss was also hoping Dave would've brought in a
draughts (checkers) board he's been asking for - again that will have to
wait but it shows that he is keen to keep his mind (and vision) active. He
is convinced that there is a DVD stuck in the DVD/TV and thus he can't
watch anything - I for one couldn't get it out, or indeed see it but I
think he's right, perhaps someone who knows the machine could help, or if
there's a fault get the thing swapped as it's gotta be under warranty.
Physically his improvement was really something - I guess until it happens
one takes it for granted but to see Boss unconsciously move his right arm
and then proudly demonstrate just how much he could do - whilst miming the
agony it used to cause him - was a tear jerker. The leg is coming on too
so it's good news there too. A real difference in the 3 weeks since I last
saw him. His speech on the other hand is making slower progress although
there is some improvement and he is being more persistent; even when a
certain word is really hard to recall he just gives it all he can to get
there, although he was reluctant to practice the "Dagenham Dave's Demon
Dog Digs Dahlias" crap I'd come up with to nail those missing "D's" - he
was trying to tell me that Larry had been to see him and (I believe) had
recently visited Farren in LA (Editor's note: not sure about this -
think perhaps he was trying to indicate that Mick F. is coming over here)
and Boss was very happy about that, but the plane noises etc took some
decoding (you mean he's learning to fly???? NO!) he was also exceedingly
proud of his letter from that sax-playing non-inhaler Bill Clinton, not to
mention two cards sent by Tony who made the models of the guitar-slinger
on Larry's most recent album - in both cases Tony has built Goodman
oriented models (bathing pig, goodman speaker stack, guitars and albums,
terrific....) He was extremely pleased with these. I had already sent him
some CDs earlier that week he'd enjoyed; it struck me that not being able
to read at present, a talking book might be the ticket so I'd got him some
PG Wodehouse on tape; we agreed that Hancock or even the Goons would be a
better bet for his tastes but the idea seems a good one in principal. I
could maybe transfer some Lord Buckley to CD too. Also on a practical
level the kind of life our buddy has lived up till now is likely to cause
some raised eyebrows when it comes to benefit claims relating to his
future as a citizen and he again proved his acting abilities in playing
dumb as in "Wot?" "Er... dont know... dribble". All in all the first visit
where I've come away feeling things could work out better than anticipated
and with a smile on my face rather than thinking "oh gawd poor ol' Boss".
There's life 'n' mischief in the ol' boy yet... Oh yeh, I also brought him
a model of a malevolent looking crow to keep an eye on him and he took
delight in brandishing it at one and all making cawing noises. God bless
him and all who sail with him - keep on visiting folks! He needs to talk
as much as possible as one nurse told me on the way out. |
|
25 July 2006: From Lou FitzGerald. Boss is going to St
Mary's on Wednesday afternoon (26th) and having a glove fitted by the
research team which hopefully will bring down swelling in right arm and
aid movement. He greeted me with a very clear "How are you?" and also said
"I'm fine." We looked at the words and sounds on his sheets but he did not
feel like up to trying with any of them. I thought perhaps it was a bad
day for a visit but he was adamant he enjoyed having company. Some words
come out clearly - for instance he repeated 'glove' but then explained
that he would not remember the word - and others don't come out at all.
His right leg movement is increasing daily - he can swing it back and
forth now but the water retention in his legs, hands and arms cause him
discomfort. The doctor said the pain in his left knee is caused by a bit
of arthritis. Today is not being a good day; he is fed up and dispirited.
Hopefully he will be happier tomorrow. He does enjoy his visitors. |
|
22 July 2006: From Rich Deakin. Russell had told me that
Boss was partial to the onion bhajis from from the Tandoori place across
from the tube station, so I was going to get him some food there, but I
arrived at Ladbroke Grove earlier than I expected. Seeing as it was
another hour until it opened (5.30), I couldn't hang around as I had to
try and get back to Victoria by 7.00 PM, so I decided to get him something
from a local mini-mart back across the road. Hard decision, even though a
ward nurse had said he was eating pretty much anything and everything when
I rang the afternoon before, so I plumped for a carton of juice and some
maltesers, and then I found some Mediterranean style munchies; falafels,
dolmus etc. so I grabbed an assortment of these and decided not to bother
with Ben and Jerry's ice cream - although he might have appreciated it if
I'd made it to the hospital without it melting in the heat! Arrived on
ward to find him sat in his chair with the television idling away in the
background with the sound down. He greeted me with a cheery grin and an
enthusiastic hello, and much squeezing and shaking of our left hands. Gave
him a bunch of DVDs, mainly music films and documentaries off the TV, and
he seemed satisfied with them. He was very pleased with the Mediterranean
savouries though - both of which he insisted he opened himself by resting
them against his right arm and tearing at them till the he could pull the
plastic container lids off. He then proceeded to munch away. He put the
fruit juice with his other cartons for later, but he expressed his
disapproval at the maltesers and after a while frowned then grabbed them
and indicated that I could take them away with me. Still one to speak his
mind then! When talking some words, and sentences too, sound perfect, but
he's definitely still finding it difficult to convey what he actually
means, especially at the end of sentences, and unfortunately I couldn't
always guess what he meant, which was obviously frustrating for him. But,
as it seems with everyone else who's left messages, you kind of get by
with a series of gestures, and improvised conversation. Still, he was much
more animated and talkative than when I visited him in May. Having read
Ian and Jules's message from July 14th I asked him if he wanted to go to
the garden to which he enthusiastically replied "yes". he indicated he
knew the way, so I told hi m to direct me whilst I pushed. After the ward
sister OK'd it he led the way saluting and talking to his less mobile ward
companions as we passed them. Initially we were turned back by a cleaner
who told us there was no admittance to the ground floor as it was now
shut, so we decided to find another way, and scooted off in search of the
garden with Boss in the wheelchair making his best Formula One racing car
sounds. However, with Boss in a wheelchair, the alternative directions
from a porter proved to be a red herring when we encountered obstacles, so
we persuaded a couple of nurses to get us outside, and to arrange for
kitchen staff to let us back in again after twenty minutes or so, which
they did, to their credit. I think he would have liked to have stayed out
there for longer, but by now (5.45) I had to get him back to the ward, as
I had to try and get across London to Victoria. So we got him settled back
in his chair in the optimum position for viewing his TV - he didn't want
any DVDs setting up just yet - with the fan blowing on him to keep him
cool, and we said our farewells 'til next time. Halfway down the ward I
turned round to see him give me a big grin and a thumbs up. Keep it up
Boss! |
|
19 July 2006: From Steve Mann. Fan and I dropped in this
afternoon to find Boss sitting in his chair, wearing shorts and looking
cool (unlike us). He greeted us with a very firm and distinct "Hello" and
referred to his "crib sheet" of sentences to tell us "I am fine" (which
came out a bit garbled but just about understandable). But proper two-way
conversation is still very difficult and relies heavily on mime and
guesswork. Physically, he's looking stronger and seems a bit more mobile.
Read him some more goodwill messages and left him a bunch of music DVDs.
Mike Bell and Ben arrived bearing salmon for his supper. He seemed in very
good spirits and waved us a cheerful goodbye when we left. |
|
17 July 2006: From 'Slim Tim' Rundall. Only just located this
site - congrats on getting this together, I've been up to see Boss about
half a dozen times since he first went in and hope to go again in a week
or so - last time took him a Chinese takeaway which went down well. I can
see exactly what people are saying about not letting him get away with too
many "boom booms" and what's with all the counting off of fingers? Still
he was looking so much better last time I saw him although physically
there wasn't as much improvement as I'd hoped. At least he's
listening to music now, glad to see some pix of him wearing the Homer
Simpson T-Shirt I bought him when it seemed all his clobber had gone
missing. What we need is that pic of him and Larry with Vera Lynn - as for
that letter from Clinton, ha! Looking forward to seeing him shortly and
bringing some more Dylan bootlegs which I know he enjoys - thanks to
everyone for their loyalty and support for our big chum! I do have another
friend who suffered a stroke 20 yrs back and explained the eyesight
thing... it seems that when (as in Boss's case) the right side is affected
then the right optic nerve of BOTH eyes can suffer. My friend cannot see
the left side of anything and thus cannot read the beginning of a sentence
but has gradually learnt to move the book or her head to compensate but
it's hard work. In Boss's case it may be that he is finding it hard to see
the right side of anything, similar to tunnel vision but kinda hard to get
your head round... anyway, right on fight on!!! |
|
16 July 2006: From Linda Homewood. Our visit this evening
was around tea time and we were wondering why David refused his, but he
explained in his animated way that he had a large meal earlier that
someone had taken in - he was full of appreciation of the tasty morsels.
We worked a little on the word sheet Anna his speech therapist had left
for him. I think there is positive progress being made, my husband who
hasn't visited for a while noticed a real improvement, also my mother was
thrilled to find him in such good humour. We left after setting up a DVD
for him. There is a new photo of David, his aunt Mary and myself today in
the photo gallery. |
|
14 July 2006: From Ian and Jules. Arrived Friday afternoon
to find Boss watching a DVD. Gave him our offerings - a Smoothie (boring)
and a savoury thing which he seemed to enjoy. We then took him out to the
garden. They were about to lock it (at 4pm) but allowed us to stay for
about half an hour. He really enjoyed sitting in the sun, but still
complaining of pain in left knee. Jules gave him some gentle massage and
then a few minutes of V.R.T. (vertical reflexology therapy). The reflex
points to the head area were very sore. Tried doing speech exercises but
he didn't really want to know though he tried a bit. He is obviously fed
up with his lack of improvement. He looked good. |
|
13 July 2006: From Gwen. Well! Boss has had 3 individual
lady visitors in 2 days, that's good news - plenty of interaction, no
wonder he looked chirpy. I must check with the ward to get times of his
treatments as I arrived while he was in physio etc. Usually I make it in
at the weekend. It was OK as I could wait, and we spent a pleasant
afternoon. I do get the feeling that I don't get his efforts to
communicate quite right but we try and it makes for a bit of light relief
and amusement, and I have to learn to speak a little more slowly and
clearly. Plenty of arm raising. I think he was describing his attempts to
walk with the rails and how exhausting it all was. I'll look out for the
speech sheets next visit and try to practise along with him. Social worker
person arrived to sort out housing and benefits so I bid Goodbye and left
him quite cheerful. He is a hit with the nurses! |
|
12 July 2006: From Richard Adams.
Escorted Boss to the meeting with his St Charles Fan Club this morning -
they absolutely adore him. Took copious notes of the team's observations
over the past 3 weeks which are much as Linda describes in her latest
bulletin. The new list of key sounds and words will be attached to his
wardrobe door so all conversations must be conducted using words beginning
only with the letters 'mmmm, wwww, sss, tttt' or whatever the key words of
the day are, and he must reply similarly! Stutterers welcome. Delivered
the hand grip, 'harpoon' thingy from John Bell & Croyden, but was asked to
take it away again because they are keen for him to work harder and to
stop using his good left hand to lift the bad right one. The less he uses
his right arm the more the left hand side of his brain will shrink.
Gruesome thought I know but a fact nonetheless - they even have an
expression for this condition, 'learnt non-use'. Took him pomegranate
juice and a melon, read aloud to him Nick Kent's great piece in G2 about
the passing of glittering Syd, at which we each shed a tear or two in
memory. |
|
12 July 2006: From Linda Homewood.
There was a care meeting today which Richard Adams attended. Progress is
being made slowly - the right side will be the main focus over the next 3
weeks. It's suggested that visitors should try and get him to use his
right arm. This is a struggle for him, but the fact that he has good
return movement shows there is potential for improvement. Also with
speech... I spoke to Anna his therapist who said we all have to make him
work hard at this. She said she has left a list with him and the key words
should be repeated often (this is a marathon for us as well as him) so
plug away, that verbal warrior as we know him will fight on. Dr Fikree
told me today that the brain scan was free of any more bleeding, and
Warfarin will probably be his next medication. There is a marked
deterioration in David's eyesight as a direct result of the stroke. New
glasses are on the way but may not help this specific problem. He remains
a perfect patient - all smiles etc. The ward staff are always
complimentary to his warming character - again the Goodman charm
shines!!!! |
|
12 July 2006: From Lou FitzGerald.
Boss had a full schedule today - breakfast meeting, physio, group
sports, occupational and speech therapy. He is working hard on hand
and finger movements which are progressing. But he gets frustrated by
little speech, and apparent lack of progress. Hs vocabulary has increased
a little since I last saw him two and half weeks ago. He is delighted with his letter
from Bill Clinton (needs a frame A5). His favourite films/DVDs are
thrillers. He is working hard physically and mentally - frustration and
exhaustion break through from time to time. Mostly he maintains a smile
and a positive attitude. |
|
9 July 2006: From Gwen. Found Dave 'the Boss' Mr Goodman
sitting up in the chair resplendent in new footwear and glasses, the specs
help him but the vision is still limited from what I can gather, it's a
bit like tunnel vision. And the visit to the Eye Hosp was a nightmare.
Looked much more the recovering patient than the bedridden invalid... also
the speech is gradually improving (only a little but it's happening). Gave
encouragement and read him a couple of letters that were there, filed and
tidied. Checked the toiletries basket so know to take him talc and hand
wash next time, always a good idea to check. I'd brought juices which was
just as well as he was out. He did communicate he was fed up, but it's the
final of the World Cup today so that should cheer him up. Getting the hang
of eye movements and facial expressions along with sounds to communicate
as well as poss. He was getting tired so left him to have a nap, he
indicated he wanted to get back into bed. Getting there Boss ! |
|
3 July 2006: From Fanny Templeton. Popped in to see the old
boy this afternoon. Took him some pineapple and cherries half expecting
him to reject them but no he seemed very happy to get them. Also took him
some “wet wipes” as it’s such a hot day. He seemed to find it a bit of a
shock at first when he wiped his brow but on second application appeared
to find it quite refreshing. His left knee has been giving him some pain
so they took him off for an x-ray on Friday but the nurse I spoke to
didn’t know the result. I suppose this has set his physio back a bit. Also
his speech therapist was seeing someone else on the ward when I was there
and as soon as he saw her he put his hand over his mouth and started
acting like a guilty schoolboy. Don’t know what that was about. He’d like
some new DVD’s. Was a good visit. He remains cheerful, expressive, alert. |
|
3 July 2006: From Linda Homewood. Brain scan was done this
morning, results at the end of the week. |
|
3 July 2006: From Linda Homewood. Arrived Sunday afternoon
armed with some munchies and the new slippers. They - what shall I say? -
belong to the pipe and slipper retired type... but after the third time of
trying to get some that fit the swollen right foot was mighty pleased when
they glided on. More trendy ones later maybe!! Found him in good form and
spent the time reminiscing about about our childhood, special memories of
his father who made us gifts one Christmas ... me a beautiful dolls house
with working lights, and David and his brother a garage complete with the
old Esso pumps etc; he was clever, and my mother remembers him fondly as a
kind lovely man - he died of leukaemia when David was about 8/9 years old.
Administered the weekly manicure, and as usual he got me to clear up
around him (I'm sure he gets you all to do this... he seems to have
acquired a tidy side to him during the time in hospital). Left as his tea
was arriving, which he didn't seem too enthusiastic about - the old taste
buds are yearning for another curry which Russell kindly took in; he was
greatly impressed with that. If anyone is popping in this week would you
be able to get him some new razors - many thanks!! I won't be in till next
weekend. |
|
1 July 2006: From Linda Homewood. The eye appointment was
cancelled due to transport problem and has been rescheduled for next
Friday. The brain scan has also been put off until next Monday. It is so
important for him to get the eye appointment - his vision is really
bothering him and if anything can be done, then the sooner the better. I
will be chasing this up. |
|
30 June 2006: From Steve Mann. Russell, Deirdre and I
visited last night - we figured a football-free evening would be a good
time. Deirdre brought him some fresh juices and we replenished his CD and
DVD collection (but he could still do with more - visitors please note).
Again, remarkably cheerful and as chatty as his condition allows - a few
more words and lots of Irene's "speaking looks", plus mimes and chopping
motions with his left hand and a few "boom boom booms". He was obviously
delighted to see Deirdre, so Russell and I took the opportunity to nip out
for a quick cigarette while she encouraged him to try writing some letters
down with his left hand. He's obviously been practising this - he has a
notepad and pen and has, somewhat shakily, been able to form some letters
and even write his name. Strangely enough, despite the repeated presence
of the letter 'D' in the words 'David Goodman', he doesn't seem to
recognise its place within the alphabet - when asked to write it down he
persistently wrote "ABCE"... Reading or writing sentences is beyond him at
the moment - but, given his impressive improvement over the past few
weeks, we can only assume/hope that he's going to get better at both
verbal and written communication as his therapy progresses. Spent an hour
or so with him and left around chucking-out time. |
|
30 June 2006: From Irene. I've spoken to David's key worker.
She said that with her clout she would have more success with the benefits
people than I would. I wasn't able to go with her to his flat, and I think
that subconsciously I was afraid to see it - imagining dead plants,
putrefying fish and the aftermath of "the fall", but she said his plants,
at least, were fine and the housing trust had kept their word about
watering. I haven't been up to visit him lately and a kind of reaction has
set in. Now that he's safely back in the world, there's the space to
grieve his lost fluency. Boss loves to talk as much as he loves to eat -
sociability is his thing... "Did I ever tell you?" "Yes, but you can tell
me again." Cherry tells me he's having speech therapy and hopefully it
will eventually flow more, but it will frustrate him. Perhaps he will take
to the e-world after all and tap out with his fingers what his tongue
can't get around. We can communicate quite well with "speaking looks" - we
should be able to after all these years. But with me he's always been the
talker and me the listener. I can always tell his stories back to him!
He's been threatening to write it all down for years. Perhaps he will now
that he's curbed. If his right hand isn't up to it, then his left will
have to do. I haven't seen this site for a while; I'd forgotten that I
could access it from the local library. Looking forward to seeing him
again after the weekend. Will be positive again by then. And no doubt
impressed by his progress. |
|
27 June 2006: From Russell Hunter. On Sunday, I promised to
bring him a curry today, so duly delivered. I wasn't sure that he'd
remember, but sure enough he was sitting there waiting (and I was 15
minutes late). Apparently he'd waved away the hospital dinner in
anticipation, so woe betide me had I let him down - a hungry disgruntled
Goodman was never a pretty sight. Anyway it was greeted with great
enthusiasm, although the hospital would frown on too many such dishes too
often. An occasional treat is OK though. Seems the Queen Mary's
appointment didn't happen because something broke down, perhaps the lift,
or maybe it was the ambulance? I'm not sure exactly what, and the nurse
didn't seem to know either - I guess she hadn't come on duty when whatever
happened, happened. It will be rescheduled but Boss didn't know when. It
would clearly be good news for him to get his eyesight problems addressed
- one less thing to frustrate him. He's gone through the early selection
of DVDs various folks have provided (probably several times over), so new
material would be appreciated. |
|
26 June 2006. From Linda Homewood. Just to say I
spoke to a doctor Fikree today - she was the SHO who was looking after
David at St Mary's. I and probably all of you have been noticing there
is a problem with David's vision. She told me he is going tomorrow to
Marylebone Eye Hospital for tests to see if it is related to the stroke,
which she almost certainly thinks it is, and to determine if anything
can be done to correct it with help of new glasses. He is also having a
brain scan on Friday just as a follow up.
|
|
26 June 2006. From Natalie Nichols (good pal of Mick Farren's
and new friend of Boss). Have been reading updates regularly, and all
of this talk about his speech reminded me of something my grandmother did
when she had a pretty severe stroke in her 70s. the doctors told her she
would lose some words; she refused to accept this. She was a feisty old
lady. Anyway, she watched a lot of tv, mainly news shows on the public
broadcasting station, and when she encountered one of the announcers or
guests saying a word she only dimly recalled or couldn't pronounce
correctly, she would capture it in her brain and keep repeating it until
she could say it and remember it. and it worked, amazingly well, actually.
And English was my grandma's second language, too. I realize this is a
fairly specialized method, but boss does have a tv, so I decided I would
share this as an idea for, perhaps, some sort of memory game he could play
with himself, or even with folks who visit, in addition to all the other
therapies he is getting. For all i know they already have him doing
something like that. but being so far away I can't really offer much help
other than positive thoughts and stuff. so perhaps this is a useful tidbit,
who knows? Thanks to all for keeping us other-side-of-the-worlders posted. |
|
25 June 2006: From Gwen. Arrived to find Boss had company,
Lou and her husband, this made the visit more lively and interesting for
him I hope. The juices I promised to bring in were appreciated and Lou had
brought tasty edibles - nothing wrong with the Goodman appetite! Hand
shelled and fed him pistachios but stopped at peeling grapes. He showed
the improved arm movements, but obviously this is going to take time and a
lot of perseverance. Fooled around a bit with the tongue and lip
exercises, serious stuff though if some sort of speech is going to be
achieved and then he won't feel so frustrated, get angry and give up. So
visits are good to keep up his morale so I must persevere too and make the
time. You're getting there Boss |
24 June 2006: From Russell Hunter. Visited yesterday
evening, found Boss dressed and sitting in a wheelchair, demolishing a
salad - obviously brought-in, awash with exotic lettuce, etc - and some
other unidentified tasty-looking morsels, and beaming from ear to ear. I
gather that movement is gradually improving, but speech is still quite a
problem. and my charade-guessing skills remain pretty poor. I hadn't seen
him for several days, and I confess that I'd hoped things would be a bit
more improved in this area, as I'm sure he wants. Perhaps there will be a
sudden leap forward. I'm mindful of what was said earlier about not giving
up on trying to get words out, not letting Boss be "lazy" about it. There
certainly wasn't any of the old "boom-boom" cop-out, but the whole
business certainly demands a lot of patience, practice and
self-discipline, qualities for which, some of us at least, have never been
regarded as role models. Of course we all love him to bits and would do
anything, and it seems that all of us, not only the man himself, will have
to learn some new tricks. So be it.
On a practical level, there's a minor problem with his TV reception which
I've promised to sort out before Sunday's England game. |
|
22 June 2006: From Linda. Attended a care meeting with
Richard Adams yesterday, everything was very positive for the goals that
were set for David from 3 weeks ago. He has managed to stand with very
little help, his right hand has more movement and is one of the main
things they are working on - high focus is speech therapy and he has a
lovely lady who is working very hard with him. The aims for the next weeks
are for David to take a couple of steps (watch this space) and generally
more independent things like dressing etc and to ask for basic things and
not just point. This must be hard for him but it's essential for him to
try and use verbal communication. His housing manager attended and was
able to tell us that he is looking to find him suitable accommodation with
help from the care team as regards to what his possible needs may be.
Richard made the point how vital it is for him to stay in the same area
where friends and support are. After the meeting I took him into the
gardens to catch some rays as it was a beautiful afternoon. He was in very
good spirits. Richard and David have a good rapport and amused each other
- lovely to watch. |
|
17 June 2006: From Gwen. Headphones on and looking trim in
shorts and socks, looking Boss-cool despite the heat!, and the pongy old
fella to his right which we both registered (nothing wrong with his
olfactories, or mine these days). He's well pleased with the improved
barnet! I did get the Mint with Tea tree to him (so necessary in this
weather,) which I explained was a body shower gel, when i gave it him to
smell, he did attempt to pretend to eat it, but I swear he was having me
on. or did he think it was a smoothy? I think not! Perhaps the mind is
there but struggling so I didn't overdo it, the visit. He'd like more
juices like cranberry, exotic fruits etc. I will bring when I can get back
next week. Also a definite reaction when I accidentally endearingly
tweaked his toe. We did have a chuckle, visiting as I gather is a bit all
or nothing. Speech slowly but surely improving. God! That's the Voice
Tutor in me. He's totally 100% there as far as the TV coverage of footy is
concerned. no problems with reception, so I left him happy as can be.
|
|
16 June 2006: From Linda Homewood. Had another lovely
visit today with my mother. We took in his supper (M&S chicken fillets
in chilli lime & coriander and fresh pineapple - can you imagine the old
taste buds were really going). We are all so amazed how David is coping
with all this as generally speaking we always find him jolly and oh!! so
very laid back about everything (he's such a lovely guy.) His days are
being spent with a busy schedule of different therapies, and he is so
enjoying the TV and DVDs. I cut and shampooed his hair today which he
enjoyed, much cooler now it's shorter. He got me to clear out his
wardrobe and wanted me to take home some of his tapes to store as he's
running out of space for other things. We left him watching the footy
very contented...
|
|
12 June 2006: From Steve Mann. Fanny and I visited in
between football matches this afternoon and found him cheerful and
talkative. I'd missed the last twenty minutes of the Australia v Japan
game and asked him the score. He successfully managed to convey that
Australia had won 3-1 with all their goals coming in the last few minutes.
He's saying "I don't know" much more clearly now. We asked him about
reading and he said he could read short things (like DVD titles and
headlines) but nothing more. Asked him if it was his eyes or his brain
letting him down and he was very definite - "bain" (sic). Proudly
showed off his belly, now minus the feeding tube, and demonstrated lifting
his right arm. Then we left as he settled down for more football... |
|
7 June 2006: Letter from Irene. Visited last Friday (2
June). He was jolly and tearful, cheerful and tearful in turn. Perhaps
tears of relief that he's getting better. Relief that I turned up for the
meeting, albeit late. Late, dripping and traumatised by nightmare journey,
so that occupational therapist had to make me tea and sympathy and looked
askance - "This is his main carer?" Seeing her soon to check out
Boss's flat for suitability to return to. How nice to be able to say that!
She thinks he'd rather stay in London, near friends and all. He had me
doing his housework, rearranging his environment. Eating for England - the
will to eat is strong in this one. Kadge and Kate came. Boss was doing
that thing he does - edge of hand to brow, then leg, then some counting.
We made guesses, but it all ended in laughter, frustration and bafflement
as usual. Now that he's more stable, I usually aim for weekends (don't
miss paid work that way), but guess will arrive weekday to meet worker.
Will take her to housing place and pray they hand over key. Wish I could
see him more often. Know he understands - or hope he still has enough
memory to understand. |
|
6 June 2006: From Lin Faust. I went to see
Boss on Sunday and spent a couple of hours with him. We talked a lot and I
raised the possibility of his friends having a benefit for him. He pulled
a face at first but I sold him the idea by promising him that it could
take place when he could attend and that all his old and present friends
would come. He liked the idea - he always liked a party. He is very
touched at the care everyone has shown. Let's face it he is not going to
be 100% when he leaves hospital, a stroke as severe as this one can take
years to recover from and is likely to leave some impairment. He will need
a lot of support. I took in some print-outs of photos from the late
sixties and he really liked them. We managed to communicate quite well and
I tried to get him out of the habit of saying 'boom boom' whenever he
can't remember a word. I got him thinking of a word that would be a clue
so we could work back to what he wanted to say. We really had quite a
laugh about it and most of the time we succeeded in understanding each
other. He finds it quite frustrating when he can't communicate, but saying
"boom boom" is a copout and he needs to make the effort or he won't
improve. He does understand that, he is very determined. He asked me to
track down Mac who was the bass player with the Deviants, he would like to
see him. He also asked me to get John Cox's (my ex) sister Marilyn to go
and see him. I am in touch with Marilyn and have a possible contact for
Mac - unless anyone else knows where he is? Last heard of in Cambridge
about 35 years ago. There was a guy there when I arrived didn't catch his
name but no one else came in - long-term visiting can be quite draining
but it's important that he does get visits. It was good to be with him on
my own though because it was easier for him to concentrate on one person
and as I hadn't seen him for so long I wasn't sure what we would have in
common. I needn't have worried it was like we had seen each other
yesterday not 15 or 20 years ago. He has quite a few gaps in his memory but
I found that when I started telling him stories he did remember,
but the facility to access the memory is a bit awry. Hopefully new
pathways are building as he talks and listens to people... That is what is
happening with his vocabulary too, he will get there. I didn't know he was
into the restaurant business these days. He made me guess what he was
doing now and the only thing I didn't think of was food, which was so
obvious knowing Boss. He hasn't changed. His leg seemed quite strong and
he said that some days he is out of bed for a couple of hours in a
wheelchair. It should be every day but he is quite hard to shift I think.
He showed how he can lift his paralysed arm using his upper arm and
shoulder muscles but it was a big effort. He hasn't tried to stand or
anything like that. If he can get into a wheelchair it should be possible
to take him out for a walk - change of scene would be good for him. I will
go and see him again in a couple of weeks. I am in in France next week.. I
promised to take him in a home-made curry. The food he was served when I
was there looked really insipid. An insult to the taste buds. I think they
have him on a diet! |
|
3 June 2006: From Gwen.
Boss seemed much improved and that's after only one week since my last
visit... I swear he said 'Hello', and was in good spirits esp. as the
footy was due to begin. He had lots of edibles and ladies to give him
attention and a man to fiddle with the aerial control bits to get his TV
functioning as best as poss... Keeping to advice on foodstuffs and diet I
just took music and DVD's. He looked v. smart in New Big T-shirt. I left
before game started as was escaping all that on my own home front... Keep
on Trucking Bossy you really looked great... see you soon Love Gwennyxx |
|
3 June 2006: From Lou FitzGerald.
Boss surrounded by female friends from 70's. Maryza, Gwen, Lou. Asked
about right arm, he concentrated and lifted it up to his shoulder... What
strength and only two days ago he could not do this. Applause... He is
enjoying the whole TV set up. He can use the remote to scroll up and down
through TV channels but cannot put DVDs into player. Suggestion: if
visiting set it up for him. |
|
2 June 2006: From Richard Adams. Swept by
Boss middle evening to deliver gym kit in readiness for his daily work out
regime. Snazzy pair of size 10 Converse trainers with velcro fasteners -
that fitted Cinderella-like - stretchy grey XXL track suit bottoms and a
voluminous XXXL white promotional Dennis Publishing T-shirt, bearing red
cameo logo and, on the back, the legend 'Nothing is impossible!'. At sight
of this he let out a low cheer of logo recognition. Left him with an
ear-to-ear smile on his face, peeling a banana one-handed and all set to
return to watching a DVD of 'Voodoo Lounge - The Rolling Stones Live in
Concert'. |
|
2 June 2006: From Linda Homewood. David and I attended a
meeting today with all of his care team (Irene called the hospital to say
she had a transport problem so didn't make it before I left. All aspects
of David's care and future goals over the next three week period were
explained to him and all would be reviewed at the end of that time (things
like encouraging personal hygiene washing etc ... exercise programme..
mobility goals... speech therapy plan...) then the next 3-week plan will
be introduced - all in all he's in for a busy time. The occupational
therapist said they would at some point like to visit David's flat to
assess suitability for future living (I told them to contact Irene who is
dealing with all of David's affairs). There was was a member of staff
present who deals with benefit claims - I gave her as much
information as I could but told her to also contact Irene on these
matters. I had a lovely visit today - we laughed loads. Staff have
suggested that David can be taken off the ward for visits to the hospital
cafe and gardens but make sure you check his programme board first and let
staff know you are taking him. Check the photos: I took some of him on the
ward today, with his permission they will be there for you to see. I know
he's saying to you all 'HEY I'M DOING OK!' |
|
31 May 2006: From Richard Adams. Visited with
Mikki Rain and teamed up with Mark Williams at Boss's bedside. Not having
been since he moved to St Charles, the transformation was staggering.
Energetically cheerful, highly animated and, as noted previously, is
especially pleased to have female company around him... Effect of having
bedside TV and the prospect of the World Cup for the next month has also
played its part. On leaving the ward I took the opportunity of talking to
staff nurse Antoinette about Boss and it was quite clear that she knew him
and his medical history well. In the space of one week of daily visits to
the hospital gym she said the progress had been dramatic and where, at the
outset, it took the help of 4 people to get him standing and supporting
his own body weight, it now took only 2 people. The best bit, however, was
that they expect him to make a 'full recovery'. Not sure what the time
scale might be, and she wasn't specific, other than to say he will remain
in rehabilitation at St Charles for a period of 3 months. As we know, Boss
is back on solids, pretty much any and all, but was reminded that he is
diabetic where sweets and chocs should be avoided as also discouraged from
- I wish there was a kinder word - gorging!They want him to get his weight
down. He was in terrific form and it's great to see him coming back to
life again. |
|
31 May 2006: From Steve Mann. Mark Williams
reports that he and Richard Adams visited tonight and the TV was
working... but it's an indoor aerial only, which needs constant twiddling
between channels - not ideal. Some experimentation may be necessary with
longer aerial lead. But at least he can now watch DVDs... |
|
31 May 2006: From Lou FitzGerald. Saw
dearest Boss today - first time. Sitting in a wheel chair (not his
favourite place). He liked the soup. He was cheerful but frustrated by
words not coming out as planned. His right arm has no movement yet. He
knows it is a long haul and was very interested in hearing about one of my
friends who had a stroke last August, spent months in hospital and is now
doing really well. He was also interested in hearing about different
friends and about my immediate family. He is very pleased with his DVD/TV
and is looking forward to it being connected. There appears to be a final
hurdle with an extension lead but Steve seems to have that under control,
and hopefully it will be connected up tonight. It was very good to see
him. He likes his physiotherapist. |
|
28 May 2006: From Cherry. Su and I made our
weekly visit to the big man himself and were surprised to find him sat in
front of his new DVD player with a big grin on his face (even though it
wasn't switched on, it needs to get the nod from the hospital electrician
first). He was a happy bunny for sure. We were pleased to see him moving
his right leg and some slight movement in the fingers of his right hand.
What an improvement! As I'd been shopping I asked Boss if he was hungry
(stupid question) - he happily munched through my lunch: black rice and
mango salad with coffee pannacotta to follow. We got the impression that
this was a definite improvement on hospital food. (Although we realised,
after speaking to a nurse, that his diabetes has to be considered when
choosing treats for him to eat.) He was in good spirits, wanting to chat
but still having problems getting it out. We entertained him and ourselves
by doing various manoeuvres in his wheelchair, including an involuntary
wheelie. The physio and speech therapy seem to be paying off and we left
him in good spirits. |
|
28 May 2006: From Steve Mann. I dipped into the Goodman Fund
yesterday and went out and bought him a nifty 17in widescreen LCD
TV/DVD/CD combo. Russell and I delivered it this evening. It was too big
to fit on his bedside table, and we’d reluctantly decided we'd have to
take it away and replace it with something smaller when one of the nurses
left the ward and came back a few minutes later with an extra
trolley/table. Boss can't actually watch anything at the moment -
everything electrical has to be vetted first and an "approved" sticker
affixed, which won't happen until Tuesday at the earliest, given the bank
holiday tomorrow... but at least he'll be set up for the World Cup. We
left him beaming at his blank TV screen, with one of the nurses sitting on
a chair next to him, saying she's reserved it to watch the football with
him. He's obviously finding it easier to wear headphones now (he was
listening to the radio when we arrived) so, if you're visiting, please
take him in a DVD or a CD or two. And a very big thank you to the nurses,
who couldn't have been more helpful in getting everything set up for him. |
|
28 May 2006: From Ian Mitchell. Freddie, Jules and myself
arrived Sunday afternoon to find Boss sitting in his wheelchair in an
agitated state. The nurses agreed to hoist him back into bed whilst we
were sent off to buy soap and shampoo etc. He was a different person when
we returned, obviously much more comfortable being back in bed. He told us
that a t.v & video was on its way and was communicating much better at
times. Though we had to leave it was obvious he wanted us to stay longer.
V. good form. |
|
27 May 2006: From Gwen. Julia gave me the news Thursday
evening, so today was the earliest i could go... So glad that he has his
buddies around. I am only too aware of what its like to be in hosp for
days totally alone and no one knowing where you are (no toothbrush etc.)
I'm sure he would appreciate visits, not busloads!, even though he can't
speak properly yet. But he's looking good considering. Regards to any
other mates of Boss who might recall Gwendolyn and lots of love and Get
Wells to Bossy. |
|
24 May 2006: From Steve Mann. Fan and I dropped in to see
him today. Boss in excellent form – no need for oxygen any more and a
healthy colour. Very cheerful and much more vocal. Read out loads of email
messages to him, and he recognised all the names and asked me to leave the
print-out. I took him in a selection of tapes – Little Feat, Stax
classics, Small Faces, old rock ‘n’ roll etc. Thumbs up to everything
except Astral Weeks – the old philistine wasn’t at all impressed with that
one… If anyone’s got a cassette of Live Dead, please take it in to him – I
know he’d appreciate hearing Dark Star. He was showing off how well he can
move his right leg now (and, to a lesser extent, his right arm). There
were still times when we really couldn’t understand what he was trying to
tell us, but this didn’t seem to frustrate him as much as it has in the
past – mutual shrugging and wry grins and we’d move on to another subject.
We spoke to a nurse, who said they were very pleased with his progress and
reassured us that he can now have any food that he wants – so I’d suggest
visitors take him in some little treats. Asked him if he wanted chocolate
or anything sweet but got a very definite no to that. There’s a microwave
so no problem reheating stuff if necessary. |
|
22 May 2006: From Ian Mitchell. Went to see Boss for the
first time today, armed with Smoothies, not knowing about his stroke till
a few days ago... He was in good spirits but we got stuck asking him if
there was anything he wanted. Yes he said, followed by much time trying to
decipher his gesticulations. A swooshing, stirring and spitting something
out mime followed. Fruit, perhaps, but it wasn't. Soap, sponge, toothpaste
maybe Yes, he would like that but it wasn't that. He kept saying You know,
but we didn't get it unfortunately. But he managed to say never mind,
forget it. Today he said he liked the ward. He'd had his physio, speech
and occupational therapy presumably as it was on his timetable. He wasn't
too tired and it was great to see him so sparky. Jules & Ian. |
|
21 May 2006: From Su Small. We descended mob-handed (well,
four of us) on Christopher Ward at St Charles Hospital (which should be a
bit handier for all his west London chums); Boss was in great form: far
more words (he can say 'fuck' very distinctly as well as lots of other,
more conservative, words) and far more movement in the right leg. They are
going to be keeping him busy with a heavy schedule of assorted therapies
(speech, physio and occupational - hope that doesn't mean he's going to be
churning out wicker baskets). The fact that he is known as Boss does not
seem to have accompanied his notes from St Mary's; can the next visitor
please take a thick felt tip pen and correct the notices around his bed?
By the way, Paul Rudolph's food suggestions were spot on - you should have
seen his eyes light up when I mentioned a curry! |
|
21 May 2006: A text from Irene. Doesn't much care for the
new place yet - complaining and swearing, thumbs down. He looked smaller,
neck stringy... but stronger and joking as well.
Listened to Four Tops tape and said he wants his other specs... |
|
20 May 2006: From Rich Deakin. I arrived at St Charles' at
about 3.40 to find him apparently sleeping like baby. Not wanting to
disturb him, I somewhat disappointedly decided to leave without waking
him, and was going to ask the ward sister to inform him that I had been in
to see him. Just as I was putting down the bottles of smoothies I'd taken
him, his eyes sprang open and he turned his head towards with me with a
big grin and pointed at me, at which point I nearly jumped out of my skin
and he started laughing! I thought he might have had enough of smoothies
by now, but he gratefully took one of the bottles and began to shake it
before I opened it for him, and he began to sip it down, and with a great
sigh of relief smacked his lips and nodded his head with another big grin.
He then put it back on his table and indicated for me to not screw it up
too tight so that he could undo it himself later on. He is very vocal with
the words he is now able to use again, and attempted to talk quite a lot,
although at this stage his vocabulary is not big enough to finish all of
his sentences, but I got the picture, and we got by with him nodding or
saying yes and no. He also seemed pleased that he's eating solids again
(naturally!) and said that he's starting to feel a lot better. He even
pointed out his wallchart rota showing me when he's due to have his speech
therapy and occupational therapy amongst other things throughout the week.
All the while I was there he was in high spirits, apart from the
occasional flash of frustration at not being able to finish a sentence,
and when I left after about a quarter of an hour he waved me cheerily
goodbye as I walked down the ward, and I felt very optimistic for him,
especially after seeing him so positive. It was a great relief seeing him
like this after reading some of the bulletins from three or four weeks
ago. Right on, fight on, Boss! |
|
18 May: From Steve Mann. Mike Bell reports that Boss has now
been moved to Christopher Ward, St Charles Hospital, Exmoor Street. I've
amended the contact page and will add visiting hours and ward phone number
as soon as I get the info. |
|
18 May: From Tricia and Paul Rudolph. Hi there friends of
Boss! Re: food ideas....I bet an Indian restaurant would make you up a
plate of fabulous mushy things like eggplant bartha, dahl, raita, rice
pudding, mango lassi, I'm sure there's lotsa amazing indian options.
Middle eastern.... hoummus, babganoush, tsatziki. Mexican...a
guacomole/ refries/sour cream/salsa dip. Chinese....congee. Paul and I
wish we were closer to actually cook him up a fan fare. Please forward our
greetings to Boss. |
|
14 May 2006: From Su Small. Got
there about 7.30pm to find the man in fine sprits. Irene reported with
great excitement that he'd eaten a proper dinner (just to clarify, the
lumps she mentioned in her text were of meat, not something unpleasant).
He couldn't be tempted by suggestions for treats from the supermarket; at
the moment he seems to be happy with hospital food but I can't imagine
that lasting too long. He has smoothies and juice in the fridge; fellow
epicureans please leave suggestions here if you have any bright ideas for
things he might enjoy eating and/or drinking. A great visit, he was on
good form, glad to see him so buoyant. |
|
14 May 2006: From Steve Mann.
More news via Irene - he can now
move his right thumb and leg and is talking more (even if the words
often come out scrambled). She adds that he's "well pleased with himself".
|
|
14 May 2006: From Steve Mann.
A text from Irene: "He's eating dinner. With lumps in it! Laffing with
joy." |
|
13 May 2006: From Mark Homewood.
ello u lot good 2 c boss is doin allright good 2 know he has a lot of
friends and family... |
|
12 May 2006: From Russell Hunter.
Called in this evening. Read out some more messages and chatted a while.
Boss definitely forming more words now, but communication still obviously
very difficult for him - mime has to play a large part. He's still not in
any sort of state to listen to music and seemed to be indicating that he's
having problems focusing. All of which is hardly surprising. But he was in
good spirits and the improvement over the last ten days or so is
staggering... |
|
11 May 2006: From Fanny Templeton. Another good visit.
Popped in about 3.30 this afternoon to find himself in fine spirits.
Responsive, alert, smiling and laughing a good deal as well as using words
like “but” and “alright” which I haven’t heard him use before. He was
being fitted with pads on his chest during my visit to monitor his
heartbeat for the next 24 hours. It is fine to take him in soups and
drinks now - there is a microwave on the ward. If they are of a thin
consistency they can be thickened by one of the staff. Smoothies would
probably be good and the right sort of consistency too. Some of the
hospital porters also popped in to see him. He has obviously built up
quite a rapport with them. I will take him some soup etc early next week. |
|
10 May 2006: From Jessy Hunter.
I went to see Boss this evening and not only was he bright and alert but
he can swallow again! He casually asked the orderly to make him a cup of
coffee - much to my surprise - and then beamed at me when I asked if he
could swallow. I think it's just water and hot drinks at the moment as the
nurses have to add a thickening powder to everything which is to help his
throat muscles develop. They are keeping the tube in him for now to keep
his nutrition up but I don't think it will be long before we can start
taking him soup and food. He said the thickening powder makes everything
taste weird but it is a step in the right direction. His speech was much
better as well and we had a good visit. Gaz and Eleanor came in while I
was there and Boss was thrilled to see them and hear all their news. This
was definitely the best I've seen him since this all started. |
|
10 May 2006: From Boss's Aunt Mary (via Richard Adams). Just
thought I would drop you a line to say thank you to you and to all Dave's
other wonderful friends for all your lovely support to him. I really am
very grateful and I know that the hospital are doing all they can as well.
My thoughts are with him at all times and praying as well that he makes
it. I have told him to keep saying to himself 'I am going to get better'.
Thank goodness he is more stable at the moment and hope this continues...
Once again thank you so very much. |
|
9 May 2006: From Steve Mann. A text note from Irene, whose son Sam
saw Boss today and found him in good form and managing more words... |
|
5 May 2006: From Russell Hunter.
Today seems to have been a social whirl for Our Man. I managed to make the
last slot before chucking-out time, and he was still going strong. I can
only echo Mark & Fan et al - demonstrative, communicative despite the
obvious difficulties, really engaged - much more vocal, and even though
the words aren't all there, that's one area where the brain can be trained
to rewire itself. From That Grim Night on Tuesday, I could hardly believe
the difference - fantastic stuff. I know the swallowing thing is a big
issue, but his recovery from the depths of Tuesday is about the closest
thing I've seen to a miracle (and a big boost for his doctors who were
then gently preparing us all for the worst) so another little miracle
isn't out of the question. (And he got free morphine.) |
|
5 May 2006: From
Mark Williams. Boss was relatively perky this afternoon,
actually managing a few words even if they weren't too clear because he
was wearing an oxygen mask. The ward nurse said this was because he'd had
a bad few days earlier this week and they weren't taking any chances. The
new feeding system is suiting him better though and I was pleased to see
that his blood pressure was lower than mine! He seems to have more tubes
in him than London Underground. Still can't listen to music or concentrate
enough to read or be read to though, which is a shame. And lissen up you
guys outside the glittering metrop (and even this sceptic isle), e-mails
of support which can be shown to him on visits are dead good. |
|
5 May 2006: From Brian
Montague. I popped in to see our chum this afternoon and
despite the fact that he is now on oxygen and hooked up to a battery of
machines (to monitor his condition and give him intratummy gruel) he
seemed okay. The window behind was open and he'd moved his top sheet so
the Paddington breeze was cooling him off. I've no doubt the Boss's
understanding is greatly improved from the early days and as we've all
noted he can grunt yes and no and (I think this is healthy) he's got
enough energy to be exasperated with his inability to talk and make
himself understood. When I left we exchanged cheerio waves and it felt
okay. |
|
5 May 2006: From Fanny Templeton. After all the drama
earlier this week I was delighted to find Boss in good spirits when I
visited him earlier this afternoon. Irene was there when I arrived and
they were having a good old chuckle together. Was very touching. I got a
definite but slightly unclear “hello” from him. He was gesticulating more
although I must confess I was completely baffled by what he was trying to tell
me a couple of times. Took him some lip balm and perfumed spray, both of
which he seemed to enjoy. Still on the oxygen mask constantly. And Larry
will be pleased to hear that he was wearing the spiffy Woosterish pyjama
bottoms, while baring his manly chest to the breeze coming through the
window. |
|
4 May 2006: From Su Small.
Got to the hospital about 7.45pm and found Irene, Sam and Charlie
there already (fortunately Boss is the nurses' pet so they didn't chuck
any of us out). He'd just had his jab so was feeling reasonably
comfortable. Given that the only words he used were Yes, No and Gerroff!
he was making himself understood pretty well. The last time I'd seen him
was on Friday 28th and between the two visits he'd been very poorly, so I
was delighted to see him so much better and relatively cheerful. |
|
4 May 2006: From Steve Mann. Another report from Irene - via
text so I'll paraphrase and add vowels... Boss not so chipper today
(hardly surprising), but cheered up after hugs and morphine. Seemed to
enjoy moistened cotton buds on the lips, so it'd be good if future
visitors take in some flavoured lip balm (but remember - he still can't
swallow). |
|
3 May 2006: From Linda Homewood. Have spoken to doctor
several times today and not a great deal more to add to Steve's message.
Dr Long said she will do everything to keep him comfortable and out of any
possible pain... she is a very kind caring individual, as are all the
staff on Grafton ward, they all seem to have become fond of our dear David
(BOSS) (who can blame them) - thank you to all of you for everything you
are doing to care for him, I watched you all last night with your patients
and you are all stars!!!!!!!! |
|
3 May 2006: From Steve Mann. Things appear better today...
Oxygen levels back to normal now - although he still needs extra oxygen
via mask. Irene reports him as being cheery and "playful" - no doubt the
morphine has something to do with this... Docs are obviously still
concerned about brain bleeds - he had another brain scan today. |
|
2 May 2006: From Linda Homewood. John and I visited this
evening, we spent a good hour with him and amazingly found him very
responsive and desperately trying to communicate with us. He is extremely
breathless but not in too much pain, hence the morphine - a low dose I was
told. His oxygen levels plummeted to 81 this afternoon - apparently that
is like being at the top of Everest without the breathing gear. It is now
up to 90 with the help of a high mix of oxygen, it should be around 95. It
seems he is between a rock and a hard place, KEEP YOUR THOUGHTS WITH HIM
!!!!!!!!!!!!!!! |
|
2 May 2006: From Steve Mann. 7:15 p.m. Boss's condition has
worsened markedly today. He has developed a blood clot on the lungs and
his levels of blood oxygen are dangerously low. Doctors are currently
treating him with Heperin to thin the blood and disperse the clot, but
this is extremely risky as he is still bleeding from the brain and any
blood-thinning can only make this worse... He is being given
morphine - the docs assure us that, whatever happens,
they will make sure he's comfortable and he won't suffer. More news as I
get it. |
|
2 May 2006: From Linda Homewood. I had a phone call from
the hospital last night at 9pm to say David (as Beth said) had a lot of
discomfort so he was being sent down for a scan. I have spoken to the ward
sister this morning who said he was brighter and more comfortable. I will
update later when I have spoken to the doctor. |
|
1 May 2006: From Richard Adams. Visited on Sunday afternoon
with Mikki Rain and found our man suitably composed and very alert to what
was going on around him. He was sitting upright in bed and had a healthy
colour in his cheeks. The pounds are falling off him which isn't too
surprising given the liquid diet but he must surely be missing solid food
badly. We were joined by cousin Linda and aunt Mary who cosied up to him
and stroked his hand and arm throughout. He was like a cat being stroked.
Linda's threats of giving him a haircut drew grimaces followed by polite
indifference at the prospect. Our intentions of knocking out Ed
Barker-type cartoons for his amusement and scribbling questions in the
hope of getting yes/no tick box answers quickly evaporated. Boss was
having none of it, becoming rather impatient, perhaps due to problems in
focusing clearly and/or difficulty in putting the words together sensibly.
We resorted instead to cheerful and all-inclusive banter round the bed for
a good 30 or so minutes and left him in good spirits. |
|
1 May 2006: From Linda Homewood. My mother and I visited
yesterday afternoon 30 April. We both agreed that David was much more
aware of what is going on and feeling and realising the situation he is
in, towards the end of our visit 30 mins he was obviously tired and wanted
the nurses to lower his head rest to lay down. Despite those lovely smiles
and acute facial expressions (eyebrows etc) the frustration was there to
see. |
|
29 April 2006: From Steve Mann. Rose, Fanny and I visited
today. As Brian said, he seems much more responsive - still not managing
much in the way of speech, but the "yes" was very clear and distinct and
he communicated well by using his eyes/eyebrows and shrugging his
shoulders. Took him in a couple more photos and read out some more
goodwill messages, which raised a smile or two. Looks as though the tube
has made him more comfortable. Apparently he was out of bed and sitting in
a chair for two and a half hours yesterday... all of which is good news. |
|
28 April 2006: From Linda Homewood. 10.15am. David had the
peg fitted successfully and was sitting out in a chair this morning - he
will now hopefully feel more comfortable without the nasal tube. The
photos that are being posted are great a real learning curve for me of the
heady 60s/70s for David, he seemed to be having a ball. David lost ALL!!
his photos when moving a couple of years ago - it would be great to get a
collection together for him (so turn your lofts out all you lovely
people). |
|
27 April 2006: From Linda Homewood. David is going down to
have the peg done today with the aid of ultrasound - let's all hope it's a
success this time!!! Yesterday they got him sitting on the edge of
the bed and he was able to maintain his balance, they are managing to sit
him in a chair via hoist. They are very unsure of his comprehension - e.g.
they ask him to lift his left arm and he does it, when asked again he does
not respond... As we all know the road will be long. |
|
26 April 2006: From Brian
Montague. Fellow friends of Boss, I popped by this afternoon to
see our mutual buddy who had been moved one bed to the left. Boss seemed
much more responsive and I'm sure that his ability to understand language
is improving. That said, he was very down and I held his hand and told him
how many of us were rooting for his well being. He wasn't interested in my
reading out the headlines or even leaving the newspapers. Perhaps as his
understanding has improved, he has become more aware of his disabilities,
so our emotional support is particularly important at the moment. |
|
25 April 2006: From Linda Homewood. Just an update.... have
spoken to occupational therapy today and they told me that David was
hoisted into a chair yesterday - the first time out of bed since 31/3. It
was only for a few moments as he was complaining of discomfort. He has had
another ECG and it was fine. There is a meeting tomorrow about the next
steps in David's care and the possibility of a move to St Charles hospital
in 2/3 weeks time where he will get specialist physio etc. Will keep you
posted. |
|
24 April 2006: From Su Small.
Irene, Cherry and I popped in to see the old devil around 7pm Saturday.
Unfortunately this was not a good time, as he was having some problems.
Apparently the attempt to fit the pegged tube that was unsuccessful was
also painful, and he was clearly in some discomfort. They said that the
next time they try to fit it they will use an X-ray to guide them. (Which
rather begs the question: couldn't they have done that the first time?) He
wasn't anything like as chirpy as the last time I saw him (Easter Monday),
poor love. He had cheered up a bit by the time we left, glad to see from
Linda's post that he's more himself now. Good news about the Quids In For
Boss fund - will there be a benefit? |
|
23 April 2006: From Linda Homewood. Visited today with John
(my husband) - we both thought that David was moving upper body much more,
certainly holding on to the side of the bed and pulling himself into a
position to see what's going on. We were very encouraged to hear him
trying to say "yes" - in fact it was quite clear a couple of times. I
threatened him on my next visit that I will give him a hair cut (don't be
alarmed that is what I do) and a manicure, if I get the approval of the
nurses and of course the Boss. |
|
22 April 2006: From Linda Homewood. I phoned the hospital
last night and was told that the attempt to fit the peg was unsuccessful
and that he would have to go through it all again next week - but as we
all know it will be so much better for him. (Great news about the hip !!) |
|
21 April 2006: From Roger Hutchinson. I want to say thanks
to all you people for visiting the old wastrel and keeping this bulletin
board up to date. I check on it daily - it's an invaluable service to
those of us 600 miles away. Keep it going, folks. Love to you, and of
course to Goodman. |
|
21 April 2006: From Fanny Templeton. Visited today at about
3pm. Bad timing on my part as he was in the middle of a physio session and
then the trolley arrived to take him to be “pegged”. Although I only spent
a few minutes with him, he seemed much more alert and responsive than last
time I saw him (about a week ago). Wished him well and he gave a great
smile and wave. Had a brief chat with the physiotherapist who told me
there is some movement in his right hip - his progress is slow but he is
trying hard. |
|
20 April 2006: From Mark Williams. I went to see the Bossman
this afternoon with a 'proper' nightshirt courtesy of Wendy at Felix
Dennis's office. As much as he could express it, Dave seemed really
pleased (I think it was the '100% cotton' label that turned him on !).
However I also spoke at some length with his doctor who explained that the
brain scan they'd done that morning showed no signs of reduced swelling,
and that he's shortly going to be fitted with a 'pegged tube' which allows
him to be fed directly through a hole in his stomach. This sounded a tad
gruesome, but apparently the feeding tube through his nose is causing
irritation and pain and the 'pegged tube' should be easier on him and,
incidentally, means that if his recovery is really slow, he could be moved
out of hospital and fed by anyone after simple training. His ability to
swallow is still almost zero. On the plus side, Dave did manage a kind of
grunted "yes" at one point - which surprised and delighted me, and both
his doctor and I agreed that he seemed a fraction perkier today... but
it's all relative. Finally if you haven't already, do check out the
web-posting on 'Left Side Stroke' at bottom of the Bulletin page: it's
very useful. |
|
20 April 2006: From Russell Hunter. Went in about 17:15
today and again found the old boy attentive and obviously trying to
communicate. Everyday news and simply-framed Q & A stuff that can be
satisfied with facial expressions and a grasp of the hand work well, but I
tried to get too clever with a question and although he had the incredible
good grace to grin at the ensuing pantomime as neither of us could grasp
exactly what the other meant, the frustration was all too evident. As all
the doctoring stuff is done in the morning, it's quite difficult to get
any hard info about plans and prognosis by the late afternoon, but Irene
arrived while I was there, to Boss's obvious pleasure, and I gather from
her that there's talk of re-evaluating his feeding and refreshment methods
and hopefully making that less uncomfortable for him. I left soon after,
as one-on-one seems the best and easiest way for him - anyway it's very
difficult to get more than one person by his bed at any one time. |
|
14 April 2006: From Linda Homewood.
I went to visit Dave with my mother this afternoon, he was laying
very peacefully, and was all smiles when he saw us. It was very hot in the
ward and he was laying on top of the bed, I made a remark about his very
sexy stockings he was wearing, he was very amused. I put the photos and a
couple of cards that were there on his side around the edges of the notice
board - he seemed pleased and was taking great interest in looking at
them, perhaps future visitors could put a change of things up there for
him. I asked the sister on the ward and she said it was ok. The sister told
me that Dave had been given a swallowing test but was unable to manage it
- they will try again in a few days. |
|
13 April 2006: From Russell
Hunter.
Went to see Himself at 18:15 today (I've been keeping away for a
week as I've had a dreadful cold which is surely the last thing he needed
to catch) and was heartened by the difference now from a couple of days
after the event. He was eloquently expressive with eyebrows and eyes
movement, head nods/shakes and (L) hand gestures - even "yes" and "no"
were discernible, aided by nods and shakes. Took some after-shave soothing
stuff and liquid soap and a large pack of the most whiz-bang disposable
razors I could find. As has been noted before by others, I'm sure short
visits are the best - I stayed for 15 minutes and he seemed on the ball
all the way through. I told him we could make him a sign to hold up -
'Thanks a lot, but I'm tired now, so please Piss Off'. He definitely
grinned at this, so I took it as a sign...and pissed off. |
|
13 April 2006: From Fanny
Templeton.
Yes, XXXL sounds like the right size for Boss, but make sure they
are lightweight. It’s very hot in the ward... |
|
13 April 2006: From Su Small.
Hello Friends of Boss. Do we know what chest size he is? There are
some reasonable nightshirts (ie dark colour cotton flannel) on eBay for
£11 plus p&p; the size is XXXL which is chest 52 - 54". Do you think that
would be big enough, or should I take a tape measure next time I visit?
Haven't been to see the lad since last Friday, as the bloody visiting
hours don't fit in with work too well. Still, plenty of time for visits
over Easter. I was wondering if we could get a calendar for the wall by
his bed; that way people could put their names down for visits and he
wouldn't have feast or famine, as it were. Love to all. Su. |
|
13 April 2006: From Mark
Williams. As Steve mentioned, I visited Boss with him and Fan
yesterday and it's perhaps worth adding something I also noticed when I
visited him last week: He's clearly very upset and frustrated by his
inability to communicate and might actually find it easier if we didn't
ask him questions to which we expect a response. I get the idea that just
talking about things of mutual interest (if we go with friends), or even
just reading to him, may be enough. But what do others think! Also, like
Larry, I took him some pyjamas donated by Wendy at Felix Dennis's office,
but was told he can only wear nightshirts because of the tube running up
his leg. Wendy is having problems finding a source of nice nightshirts so
if you know of one, e-mail me at
marksimonwill@aol.com |
|
13 April 2006: From Linda
Homewood. I have spoken to Dave's
doctor this morning - nothing has changed in the last few days. They are
introducing more physio as the time passes; it seems the gently-gently
approach is being taken in these early days. Dave has an irregular heart
rhythm due to the heart attack in August 05 which has caused the blood clot
that travelled to the brain. They are unable to give any idea of the level
of recovery that Dave will make. The physio has said that they are
concentrating on trying to get him to be able to sit up and are pleased with
how that is going. He is only being treated with aspirin and they may start
heparin after the Easter break to keep the blood thin - warfarin may be used
at a later date. You are all doing a wonderful job with the visits etc. I am
still overwhelmed at the love and concern you all have for Dave. |
|
12 April 2006: From Brian
Montague. Hello Fellow Friends of Boss. I popped in to see the Main
Man about 5.30pm today. He was sleeping like a baby (albeit a large one).
I had a brief chat to a doctor and as we know, it seems that Boss's
recovery will be a long haul. Visits are important for Boss's recovery as
any stimulus that he can get from us will help him. As we are all aware,
his understanding of language is greatly reduced, so photos, pictures and
simple conversation are probably the most useful thing that we can do for
him. That said, visits should be kept brief so as not to tire the old
bazzard.
|
| 12 April 2006: From Steve Mann.
Visited this afternoon with Fan and Mark Williams. Boss was a bit groggy -
presumably from the increased medication last night - but responsive. I read
out a load of messages from well-wishers and showed him a few photos people
have sent me (he wasn't wearing glasses, and shook his head when we asked if
he needed them, but seemed to focus OK on photos held at arm's length). Mark
read him some snippets from The Week, and Boss nodded in agreement
when Mark suggested that some music mags would also be a good idea. Left
after half an hour as he was obviously getting tired... it seems short
visits are probably best for the time being. |
|
12 April 2006: From Larry Wallis.
OK, I went to see The Human Planet again yesterday 11th (third visit), and
once again I was pleased to see the old Goodman humour in the eyes,
although of course he ain't actually cock-a-hoop - but what can we expect
from such a "live life to the full" kinda guy who's confined to a hospital
bed? I took him the BIG PYJAMAS as requested, and if I do say so so
myself, they are a bit spiffy in a Bertie Wooster kind of way. I also took
an electric toothbrush and Sensodyne paste. God bless Boss Goodman, he
shall return!
|
| 12 April 2006: From Jessy
Hunter. I went to visit Boss last
night (11 April). It was the end of a long day for him I think. He has been
having some very bad headaches which are making him uncomfortable and
affecting his sight somewhat. He has also had some pain in his chest which
is not helping his breathing. Unfortunately he hasn't been able to listen to
the Walkman much yet as it gives him a headache. The doctor on call gave him
a full examination while I was there and he didn't feel that anything had
changed dramatically in Boss's condition but he did up Boss's painkillers
for the evening. Once he was settled though we had a good visit. I took some
old photos with me which he seemed to enjoy and his old charm shone through. |
| 11 April 2006: From Richard
Adams. I am in the process of setting up an account with the
Royal Bank of Scotland, Notting Hill branch, for the sole purpose of
generating cash for Boss. QUIDS IN FOR BOSS GOODMAN will serve to provide
money for the purchase of such things as an i-Pod - when the time is right,
handsome nightwear, little luxuries but, as importantly, to serve as a
savings account for the time when he recovers sufficiently to blow it! More
details follow. |
| 10 April 2006: From Mike Bell. Boss has his
AM/FM radio. It also has SW which is good for cricket (BBC World Service). |
|
11 April 2006: From Linda Homewood (Dave's
cousin). Dave is having physio and he has gained a slight movement to
his right foot which is great news. I would like to say a big thank you to
all you lovely people (Dave's friends) who are showing such wonderful
support for him. I don't know you but thank you Steve for setting up this
web site what a fantastic idea!!!!
|
| 10 April 2006: From Mike Bell (Portobello Gold).
Am getting Boss a Sony AM/FM radio with a decent set of cans
(so as not to upset the rest in the ward) on Tuesday, so the old codger can
listen to the news, the music, the cricket, the footie and the gossip.
Apparently, as of Sunday, he is getting more animated (with his left hand
only). |
| 7 April 2006: From Brian Montague. Took Boss a Walkman. While there, nurse and I attempted to see
how easy it would be for him to communicate in writing. As his right side is
paralysed, he has to use his left hand... it seems that he can form letters OK,
but cannot yet put these together in meaningful words. |
Basic information on the symptoms and effects of left-brain strokes
can be found
here |